With narcolepsy, disrupted sleep-wake cycles can mean a disrupted life1,2
Narcolepsy affects life all hours of every day, which means patients are planning around it and managing it all day and all night.2,3
Patients are tired when they want to be awake and may be awake when they want to be asleep1,3
The disruption to a patient's life is constant. During the day, excessive daytime sleepiness or cataplexy can mean they miss out on work, school, and time with family and friends.2,4 During the night, disturbed nocturnal sleep can mean they miss out on the continuous sleep that helps them feel refreshed.5,6
More natural sleep patterns may help people with narcolepsy7
Prioritizing more natural sleep patterns is important.7 Encourage patients with narcolepsy to make lifestyle changes that can lead to better sleep,2,4 and provide them with a sleep diary so you can have a realistic idea of their sleep patterns.
Managing narcolepsy is complex, involving both pharmacologic treatment and lifestyle changes.2,3
Reminders for your patients about good sleep habits*
*Sleep hygiene tips obtained from Sleep Foundation and the Centers for Disease Control and Prevention.
Go to bed and get up at the same time every day, even on weekends.8
Keep the bedroom quiet, dark, and at a comfortable temperature. The ideal temperature for sleep is about 65°F.8
Naps can help manage daytime sleepiness. Plan them prior to events or important parts of the day that require being alert.9
Avoid large meals, caffeine, and alcohol before bedtime.8
Stay active. Exercise can contribute to more sound and restful sleep.8
Continue the conversation
Encouraging your patients to get a realistic idea of how they’re sleeping at night can help with shared decision-making around their sleep health. Our sleep diary may be helpful to share with them as they work to understand their own sleep patterns and manage the burden of daily and nightly symptoms.10
Sign up to receive more information as you help your patients achieve more natural sleep patterns
Complete the form to learn more about how to help your patients prioritize their sleep patterns. You will also have the option to receive a set of sleep and symptom tracker diaries to help encourage these conversations.
1. Mohsenin V. Narcolepsy—master of disguise: evidence-based recommendations for management. Postgrad Med. 2009;121(3):99-104. 2. Swick TJ, Bogan RA, Thorpy M. Challenges and opportunities in the management of narcolepsy CME. Medscape. June 13, 2019. Accessed March 4, 2020. https://www.medscape.org/viewarticle/914057_print. 3. Bassetti CLA, Kallweit U, Vignatelli L, et al. European guideline and expert statements on the management of narcolepsy in adults and children. Eur J Neurol. 2021;28(9):2815-2830. 4. Scammell TE. Treatment of narcolepsy in adults. UpToDate. November 4, 2020. Accessed November 17, 2020. https://www.uptodate.com/contents/treatment-of-narcolepsy-in-adults. 5. Roth T, Dauvilliers Y, Mignot E, et al. Disrupted nighttime sleep in narcolepsy. J Clin Sleep Med. 2013;9(9):955-965. 6. Mahoney CE, Cogswell A, Koralnik IJ, Scammell TE. The neurobiological basis of sleep. Nat Rev Neurosci. 2019;20(2):83-93. 7. Abad VC. An evaluation of sodium oxybate as a treatment option for narcolepsy. Expert Opin Pharmacother. 2019;20(10):1189-1199. 8. Tips for better sleep. Centers for Disease Control and Prevention. July 15, 2016. Accessed August 23, 2021. https://www.cdc.gov/sleep/about_sleep/sleep_hygiene.html. 9. Suni E. Narcolepsy treatment. SleepFoundation.org. https://www.sleepfoundation.org/narcolepsy/treatments. Updated February 17, 2021. Accessed September 10, 2021. 10. Lawrence G, Muza R. Assessing the sleeping habits of patients in a sleep disorder centre: a review of sleep diary accuracy. J Thorac Dis. 2018;10(suppl 1):S177-S183.